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Under Our Skin: Award-Winning Filmmaker Focuses on Lyme Disease

Andy Abrahams Wilson is an award-winning documentary filmmaker, with a personal connection to the topic of Lyme. His non-profit company, Open Eye Pictures, is currently making the first in-depth documentary film about the illness. Under Our Skin: The Untold Story of Lyme Disease, is scheduled for release in 2007. For details about the film, please see http://www.lymediseasefilm.com. I spoke with Andy on July 24, 2006.

Why did you choose to make a documentary about Lyme disease?

The subject of Lyme chose me, I didn't choose it. My sister had Lyme twenty years ago. She was complaining, and I thought she was lazy.

Flash forward to the present, on the West coast, a good friend of mine was getting sicker and sicker, None of the doctors could find what's wrong, it seemed to be a mystery illness. Plus, her symptoms were very bizarre, she was having neurological problems. She'd walk into the supermarket and forget who she was. Not just where she was, but who she was. It seemed pretty incredible to me, especially for something that couldn't be diagnosed.

I was shocked to find that no documentary has been made about Lyme disease, at least one that is capable of reaching a national audience.

What surprised you most during the making of the film?

The only way to respond to that is disbelief, that it's gotten this far and this bad. It's hard to comprehend how so many hundreds of thousands of people are in this situation. And that there are so few resources, such little awareness. And that Lyme sufferers are systematically dismissed and disregarded. So, it's really the callousness with which our system treats the disease, and treats people with the disease, that is surprising.

How many people did you interview for the film?


We've heard hundreds of stories, when doing the initial subject searches through Lyme organizations, bulletin boards and word of mouth. For the documentary, we probably filmed at least a hundred. And those stories are alarmingly and resoundingly similar, starting with the mysterious symptoms, the misdiagnoses, and not being taken seriously. Being told that it's all in their heads. Money spent, specialists seen, those are the common threads.

Who is the audience for this film?


It's a national audience, a general audience. We want this to be the media event that breaks through, that brings an awareness to Lyme that it's never had.

Thank you, Andy. I wish you much good fortune with securing funds to complete the film.


Suzanne Arthur ©2006