Lyme disease symptoms, treatment, diagnosis, prevention and research.
Lyme Disease Research Database
Lyme disease symptoms, treatment, diagnosis, prevention and research.
As a thank you for signing up to the LDRD newsletter, here are 3 free interviews (below the Youtube video).
LDRD members have access to all interviews. Membership is a great deal. For a fraction of the price of a magazine subscription you have immediate access to hear all the interviews we've conducted to date. And where could you find a magazine solely dedicated to Lyme news and information from a such wide array of reliable experts? Lifetime membership means you will have access to this continually-expanding resource for life. We add new interviews every month. You'll also be among the first to learn about breakthroughs in Lyme treatment, legislation and other related events.
Raphael Stricker, MD, is in practice in San Francisco, CA, at Union Square Medical Associates. He and other physicians in the multi-specialty clinic see approximately fifteen-hundred Lyme patients. From 2005 to 2007, he served as the president of ILADS, the International Lyme and Associated Diseases Society. During his presidency ILADS membership increased to nearly 400 members, the biggest growth in its history. In addition, the organization accomplished a significant number of positive steps on the behalf of Lyme patients, including establishing the guidelines for the treatment of Lyme. I spoke with Dr. Stricker about the controversy over chronic Lyme, the pros and cons of the existing Lyme tests, and the IDSA's argument against long-term use of antibiotics.
CJ's arduous trek back to health is a dramatic story with many ups and downs that will sound all too familiar to Lyme patients: Inability to work. Inability to walk without crutches. Loss of disability benefits. A marriage bond too weak to stand the stress of a debilitating illness. Perhaps most disheartening of all, the loss of a childhood dream - along with her professional music skills. Along the way, while working as a nurse, CJ decides to help a young friend who is facing two grueling years of chemotherapy. She runs in a race to raise money for leukemia, and it hurts. She finishes, but not without challenges. Yet she continues running and taking the high road. Entering rigorous physical competitions such as the ironman, she even ventures into the sky -- on the flying trapeze.
Alan MacDonald, M.D., is a pathologist affiliated with St. Catherine of Siena Medical Center in Smithtown, NY. His current research, supported by the Turn the Corner Foundation, NY, is concentrated on developing a new biology, including DNA probes to detect Borrelia DNA in spinal fluid and in tissue sections from Alzheimer autopsy tissues.
Through his research, Dr. MacDonald is pioneering a broader understanding about the behavior of Borrelia burgdorferi, the bacteria that causes Lyme disease. He has appeared as an invited lecturer at the ILADS National Scientific Meetings and Columbia University/Lyme Disease Association conferences in Philadelphia, PA, where he presents the findings from his explorations into the connection between Borrelia spirochetal infection and Alzheimer's disease.
Patient advocate Tina Garcia is passionate about justice and fairness.
Disabled by Lyme in 2004, she soon discovered the injustices in Lyme treatment. Particularly, she was outraged to learn that patients in her position were frequently turned down for medical insurance coverage for the treatment of Lyme disease. Her own insurance requests for coverage were rejected as well, and like so many Lyme patients she had to pay for treatment out of pocket.
When Connecticut Attorney General Richard Blumenthal began the investigation into the IDSA standard of Lyme treatment, Tina submitted her rejected insurance claims to his office. However, her concern wasn't simply about her own welfare. She also gathered and submitted claims from other Lyme patients, and founded LEAP Arizona, a Lyme Education Awareness Program. She began a dialog with the Assistant AG, which lead to her invitation to testify on July 30 at the historical IDSA hearing in Washington, DC.
Tina, who is still healing from Lyme, traveled to DC where she delivered her eloquent testimony to the hearing panel. On her website, you will find a link to listen to the IDSA hearing, and a copy of her testimony.