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Lyme disease Children

Treatment issues for children with Lyme

Dr Charles Ray Jones is a man with three ordinary names - yet he couldn't be any more extraordinary in his service to chronically ill patients, the children he treats every single day.

A reader sent a note last week that brought tears to my eyes -- the joyful kind.

Here is part of her note:

"My 11 year old is now under the care of Dr. Jones and is making incredible progress in his path to wellness. I appreciate what you are doing. Thank you for being willing to get the word out. What a frustrating journey this has been but I finally have my medical support system in place. It took a while. I was told by an infectious disease specialist in Maine that I was crazy and that my son was perfectly healthy. Dr. Jones is a saint and he has given my little boy his life back. He is again running and climbing trees and happy and bubbly...a far cry from last year at this time. I wish all of you the best and again, thank you. Have a wonderful Thanksgiving."

Unfortunately, too many moms can relate to being told by a medical professional that there is nothing wrong with their kid, when the reality is that if Lyme bacteria is present, treatment could restore the child's health (and the mother's sanity).

Dr Jones has been called (by a colleague of his), "an international treasure - a courageous, selfless, inspirational, and outstandingly gifted clinician who has helped thousands of the most severely ill children with Lyme disease from around the world to regain their health and their lives."
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Dr Jones talked with me a few weeks ago, about Connecticut Governor Rell's June 2009 decision to allow doctors to treat Lyme disease. He also talked about the significance of the recent IDSA Lyme treatment guidelines hearing in Washington, DC, and the future of Lyme disease treatment.

Listen to the interview in the member’s portal.

Keeping kids Lyme free

When you were little, your mom probably strapped your sandals on your feet and dressed you in shorts before she sent you out to the backyard to play. Now, if you live in a region where Lyme is rampant, and you're aware of the trouble caused by Lyme disease symptoms, you're likely to cover up your kids from head to toe and spray them down with bug repellent before sending them outside.

Although you may feel the need to take more precautions if you live near wooded areas where deer that harbor ticks roam, the reality is that ticks are found even in urban neighborhoods. Anywhere grasses or shrubs grow, ticks can hide. Ticks need warm-blooded animals or people to give them a ride and a hot dinner. They cannot get around very far by themselves, so they hang out on the tips of branches, leafy bushes, grasses, and hop on when they sense a convenient critter walking by.

Lyme disease is a growing endemic, and prevention is the best medicine. Keep your kids protected when you send them out to play, and make sure older children are taking precautions, especially as they head out to the woods and trails for hiking and playing.